A diagnosis of Amyotrophic Lateral Sclerosis (ALS) can change a person’s life in many ways, affecting their body, emotions, and relationships. Studies show that getting support from others and being kind to yourself can help people with ALS feel better and enjoy life more (Pagnini et al., 2015).

This guide provides evidence-based strategies and resources to empower you through your journey:

Acknowledge Your Emotions

• It’s normal to feel sad, scared, or angry
• Let yourself feel these emotions without judgment
• Try writing down your feelings in a journal

Build a Support Network 

• Talk to family, and friends, or join support groups
• Contact ALS organizations for resources and support
• Share experiences with others who have ALS

Stay Informed

• Learn about ALS to feel more prepared
• Talk with your healthcare team about treatments and plans
• Express your needs and preferences

Focus On What You Can Control

• Set small, achievable goals
• Stick to a daily routine for structure
• Work with your care team to manage symptoms and maintain independence

Use Professional Resources

• Seek counseling or therapy for mental health support
• Consider mindfulness practices such as meditation or yoga
• Ask about home modifications and assisted devices to support daily tasks

Practice Self-Compassion

• Be patient and kind to yourself as you adjust
• Celebrate small wins and remember your strength

Coping with an ALS diagnosis is challenging, but using these strategies can help you take control of your journey. By focusing on what you can manage, seeking support, and being kind to yourself, you can maintain your well-being and improve your quality of life.